Friday, May 18, 2012
   
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Stress and Caregiving

High Caregiver Stress Increases the Difficulty Level in Working with Clients

By Pamela D Wilson, The Care Navigator, CSA, MS, BS/BA, CG

old_man_gray_hairBy Pamela D Wilson, The Care Navigator, CSA, MS, BS/BA, CG

Many attorneys become involved with families when health care issues arise, especially memory loss. I see many cases where a caregiving situation running smoothly for years suddenly turns into a nightmare. Perhaps the individual requiring care becomes combative or incontinence becomes an overwhelming task to manage. A previously comfortable situation becomes turbulent and turns into a situation where the caregiver is at a breaking point. However no thought was previously given to legal needs. Thus there is no vehicle for the family member to make health or financial decisions on the part of the person needing care especially if the consideration is to place the individual in a care community. And, as their attorney, you are brought in to work magic.

Read more: High Caregiver Stress Increases the Difficulty Level in Working with Clients

 

How Did I Get Involved?

woman_family_hospital_bedBy Pamela D Wilson, The Care Navigator, CSA, MS, BS/BA, CG

I recently received a telephone call from the housekeeper of a woman named Shirley. She called, frantic because Shirley was starving herself -- she wanted to die. After speaking with the housekeeper, I learned that there was a neighbor who had taken on the task of helping Shirley on a regular basis because there was no immediate family in town.
I spoke to Mike, the neighbor, about visiting with he and Shirley to determine what might be done. Upon meeting Shirley, I discovered a small woman of 5 ft. and 80 lbs. according to the scale in her home. She was quite conversational and admitted that she was starving herself because "the angel of death had visited" and she no longer wanted to live. Shirley was physically weak, could barely walk by herself and had not bathed in some time. She had a notable lack of memory and her only means of nutrition was juice that she drank during the day.
Mike was concerned about his personal responsibility (and liability) in supporting Shirley's desire to starve herself. We were concerned about her falling in the home or being too weak to call for help. We spoke to Shirley about going to the doctor - she refused and said she had not seen a doctor in over five years because she just didn't trust them. She did agree to have a personal care provider come into her home to help her bathe and check on her on a daily basis in addition to wearing an emergency call device in the event of a fall or other emergency. Mike was torn between his personal desire to help Shirley and his desire to do the right thing for her physical well-being..
In a situation like this, where there are no clear guidelines, where does one go for help or advice if a person refuses to seek medical help? Many of us in our desire to help others sometimes become involved in situations we are unprepared to deal with. Contacting a geriatric care manager is one step. This will allow an independent evaluation and discussion of options. In Shirley's case, we were eventually able to convince her to agree to go to the hospital for an evaluation. The result was that she was diagnosed with cancer and was placed in a hospice facility where she could be made comfortable and remain safe for a few weeks until she passed away without the worry of pain or discomfort.

I recently received a telephone call from the housekeeper of a woman named Shirley. She called, frantic because Shirley was starving herself -- she wanted to die. After speaking with the housekeeper, I learned that there was a neighbor who had taken on the task of helping Shirley on a regular basis because there was no immediate family in town.

I spoke to Mike, the neighbor, about visiting with he and Shirley to determine what might be done. Upon meeting Shirley, I discovered a small woman of 5 ft. and 80 lbs. according to the scale in her home. She was quite conversational and admitted that she was starving herself because "the angel of death had visited" and she no longer wanted to live. Shirley was physically weak, could barely walk by herself and had not bathed in some time. She had a notable lack of memory and her only means of nutrition was juice that she drank during the day.

Read more: How Did I Get Involved?

   

Rid Yourself of Stress, High Blood Pressure and Sleep Better - It's Not a Dream

lady_balcony_smiling_2By Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

Meditation, but not just any kind, has the potential to lower your blood pressure, increase your ability to learn and clear your mind.  Transcendental meditation, a technique offered in the United States since 1959 has medically and statistically proven benefits to your health.

It's a well known fact that stress damages our brain and our body by creating chronic disease.  It causes us to do things without thinking, to make poor decisions, to be more emotional, distracted and exhausted.  If you're in a caregiving role, it's likely you experience stress on a daily basis. It's time to take a daily vacation from stress by considering the practice of transcendental meditation.

Read more: Rid Yourself of Stress, High Blood Pressure and Sleep Better - It's Not a Dream

 

Be the Person Others Want to Be With

By Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

son and mother_250x167"Ability is what you're capable of doing. Motivation determines what you do. Attitude determines how well you do it." This is a quote from Lou Holtz former Notre Dame Football coach. Caregiving (or anything we do) is difficult if that is how we see the task. Our attitude toward caregiving determines how well we will perform. To some, caregiving is a privilege, it is love, it is kindness, and it's the ability to return the care to a parent that we received from them as a child.

Our mind is the most powerful tool we have, yet many of us take it for granted. What our mind believes we will most likely experience. A positive attitude is a learned attitude – it is the action of continually, habitually reinforcing and believing the positive and eliminating the negative from our minds.

Read more: Be the Person Others Want to Be With

   

Caregiver Burnout - At Home and at Work

Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

couple at table arguing_250x166You're a caregiver; burned out, exhausted, angry. You can't possibly do more for your loved one. You want to escape the situation yet wonder how you ever got to this point. You're the person at work who takes the extra shifts, who pitches in when help is needed. Whether you are a caregiver at home or a caring type at work isn't it time to look at how your actions are contributing to the situation?

The effects of caregiver burnout are significant and will impact your life. It's documented; caregiving results in death and disease. Many of the caregiver burnout situations I navigate result from the caregiver taking on too much but not realizing they've done so until it's too late. In the workplace it's a situation of feeling that you're the only one who can come to the rescue. This happens so frequently that others depend on you to rescue them. You become the doormat for others to stomp on and it's finally wearing on you.

Read more: Caregiver Burnout - At Home and at Work

 

Psychological Stress Linked to Love-Hate Relationships of Caregivers

By Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

black and white_250x166February is the month of love: Cupid shooting arrows, bouquets of flowers, boxes of candy, Valentine's Day cards -- everyone wanting to feel loved. And yet a feeling of mixed emotions often exists with those providing care to others. You look at your life and wonder how you got here. It's not what you had hoped for and certainly not even near the ideal situation. Sometimes you wish you could just run away. Research indicates that caregivers with mixed emotions about caregiving experience a higher degree of psychological stress and that the foundation for these feelings is the quality of the relationship with the person receiving the care. (1)

Let's go back to childhood and your relationship with your parents. Your memories are positive, negative or mixed. You loved your parents or you hated your parents. I remember times when I was an angry child telling my mother I hated her when she withheld something I wanted. God bless mothers for putting up with children as temperamental as we were. Fortunately this early love hate relationship, at least for me, did not have a negative affect on the care I provided for my mother in later years. I have many positive, loving memories.

Read more: Psychological Stress Linked to Love-Hate Relationships of Caregivers

   

The Up and Down Emotional Rollercoaster

By Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

face asian woman_167x250Caregiving isn't an easy road.  You feel joy and fulfillment as well as guilt, anger, depression and loneliness.  You feel family members have left you with the goods -- the responsibility of physically and financially caring for your loved one.  On one hand you resent the time you spend caregiving on the other you feel guilty because you're not doing more.  Your life has lost balance and you realize you can't see the forest through the trees.  No one seems to understand.

Here are tips to keep you sane and to give permission to care for yourself.

Read more: The Up and Down Emotional Rollercoaster

 

Maintaining Dignity

By Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

happy older couple_250x167As caregivers, our inclination is to do everything for the person for whom we provide care. We see it as our duty, as an accommodation, as the right thing to do. Who wouldn't want to be waited on, to receive care?

But sometimes the amount of help we provide can be a detriment. If we do everything for a person it can have the opposite effect of our good intentions to rehabilitate or help them remain independent. It can make the person receiving care feel that they can do nothing on their own. It can increase feelings of helplessness and decrease physical ability. Too much help instills a sense of lost dignity.

Read more: Maintaining Dignity

   

Traumatic Events Cause Ongoing Stress and Mimic Mental Illness

By Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

parents in denial_166x250A client of mine suffers from post traumatic stress disorder (PTSD). He had an accident ten years ago and is extremely anxious. He cannot stop thinking about the accident and often relives the event repeatedly. If you saw him you would see an attractive silver haired older man able to carry on an intelligent conversation and discuss world events with the best of us.

Catch him on a bad day and you see someone who is anxious and paranoid. He trusts no one and will occasionally accuse friends of stealing from him. He may be very angry, may yell and may suffer from headaches, gastrointestinal distress, dizziness, chest pain or discomfort in other parts of his body all in the same day. He will tell you about the incident over and over and complain that he has nightmares and does not sleep. To an ordinary person he might appear to have lost her mental faculties. But he has not. He is most comfortable around people that he knows well. Strangers throw him into re-living the accident and experiencing a great deal of stress. He does best in his own home focusing on indoor gardening and woodworking projects.

Read more: Traumatic Events Cause Ongoing Stress and Mimic Mental Illness

 

Avoiding Problems With In Home Caregivers

By Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

older man_166x248With aging comes the great likelihood that we will need a caregiver; someone to help with daily tasks and personal hygiene. Often it's not practical for family members and friends to provide all the assistance you or a loved one needs.
Care provider agencies provide this type of assistance. However the transition can be fraught with frustration when family members make incorrect assumptions that caregivers are trained, trustworthy and do not need supervision. To complicate the situation, in many cases, the person needing the care resists the idea and can cause difficulties in making the transition to accept care. Many times the agency caregiving relationship is misconstrued as a family relationship versus an employer to employee relationship. Individuals receiving care often cross the boundary creating issues that result in situations of potential conflict of interest, safety or abuse.

 

 

 

Read more: Avoiding Problems With In Home Caregivers

   

Caregiver Stress Increases Behavioral Symptoms of Dementia

very_sadBy Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

A study recently released in the Journal of the American Geriatrics Society (1) indicates that caregiver-patient interpersonal interactions contribute to the presence of neuropsychiatric disorders in individuals with dementia. In simple terms, lack of caregiving knowledge often results in caregiver stress and anxiety that is projected on the person needing care increasing negative behavioral reactions. In this study, the neuropsychiatric disorders studied were: restlessness, constant talking, hallucinations, paranoia, uncontrolled anger, combativeness, danger to self, danger to others, destructive behavior, repetitive questions, wandering and waking the caregiver.

It's well known that caregivers are depressed. This depression (and degree of) is considered bi-directional in its effect on the person receiving care. This means that caregiver depression contributes to challenging behaviors in the care recipient and challenging behaviors contribute back into increased depression in the caregiver. More depressed caregivers report more behavioral issues in the persons for whom they provide care than those who manage the situation well.

Read more: Caregiver Stress Increases Behavioral Symptoms of Dementia

 

Checking on Family During the Holidays

By Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

holiday glitter_250x167Many family members only see their parents, grandparents, aunts, uncles or other loved ones during the holidays due to distance, time and many other factors. It is often after this that I hear "mom and dad seem to be really going downhill". The holidays are a good time to visit family and to monitor ongoing ability to do everyday tasks.

Have you noticed a decline in physical ability or mobility? What is the level of physical stamina? Do parents seem to tire easily, have difficulty walking on flat surfaces or up and down steps? Have they lost or gained weight? How is their appetite? How is their general mood? Do they have a good social network on which they rely? Is the home being maintained? How are their driving skills? Are bills being paid on time and correctly? Have they kept up on medical and other health related appointments? Are they able to sort through mail and throw away unnecessary items? Are pets being cared for?

Read more: Checking on Family During the Holidays

   

Denial Is Fear in Disguise

By Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

male doctor bedside_166x221The mother of a client was diagnosed with cancer about a month ago. There are four children, two sisters and two brothers, in the family who rallied to provide care for the mother in the way of day to day activities such as housekeeping, meal prep, errands, laundry etc. After about a month, the children decided to seek outside assistance because they realized that their mother's health will not improve and they cannot keep up the schedules of providing care for her, working, and caring for their own families.

In a meeting with the entire family, the mother kept stating, "I can't decide to do anything (receive outside care) until I know what is going on." The daughter most responsible for her mother's medical needs went into a long discussion of what the physicians had told her mother about the condition and the fact that it is terminal. The son most responsible for finances reassured his mother that there was no issue in paying for care and that he and his siblings want her to have more support than they can offer.

Read more: Denial Is Fear in Disguise

 

Give Yourself the Gift of Health

By Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

female nurse_152x250When I was a child, Valentine's Day was a significant day. My mom purchased the small box of cards that I would print for all of my classmates; especially the one boy who I hoped would like me. As I grew up, Valentine's Day continued to have special meaning. Flowers would (or would not) show up in the workplace, dinners would (or would not occur), I would (or would not) have a special person to acknowledge on this date. Then I began to realize that I didn't really need this date to do something special for someone, or for myself. I could recognize myself or others anytime during the year.

Read more: Give Yourself the Gift of Health

   

Intimidated by “The System” – Don’t Be

By Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

male doctor at desk_167x250A woman called asking for assistance in having her father released from a nursing home. Her father was admitted 45 days prior for rehabilitation after a stroke. It was the opinion of the nursing home that her father needed continuous care and should remain in the nursing home permanently. The director of the nursing home went to the extent to tell the daughter that they would see that Medicare did not pay for his initial 45 days of care if they took him home "against medical advice" (this is not ethical or legal). The nursing home further contacted county adult protective services to "advise" the daughter that they would be "supervising" the care she would provide her father if she moved him home.

 

 

 

 

 

Read more: Intimidated by “The System” – Don’t Be

 

Ten Reasons Older Adults Leave Their Homes for Institutionalized Care

By Pamela D. Wilson, The Care Navigator, CSA, MS, BS/BA, CG

woman walker_166x234As we move through life at ages 50, 60, 70 and beyond, we notice subtle changes in our abilities. The changes may seem small at first glance. However, subtle changes quickly become difficult to reverse if ignored.

We become less active; what used to be an easy trip up a flight of steps now leaves us breathless with aching knees. Trimming our toenails and putting on shoes and socks is a struggle. The organizational skills and sharp memory we once had have gone by the wayside. Sometimes we can't remember what we were getting ready to do. We begin receiving past due notices on bills. The one pill we previously took for arthritis has now turned into ten pills a day for various ailments and we have three doctors we see on a regular basis.

Read more: Ten Reasons Older Adults Leave Their Homes for Institutionalized Care

   

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